On the 29th I shared the blog Avery's Bucket List, a sweet blog dedicated to the life of Avery a five month old baby in Texas who was diagnosed at Easter with SMA. Her dad started the blog to keep friends and family up to date with Avery's condition and to create a bucket list of items that they (her parents) wished for her to accomplish, as if she could beat this horrible disease.
Today sadly her dad posted that Avery lost her battle with SMA.
If you have not had a chance to check out their blog it is not to late. It is a wonderful tribute to this baby girl. Avery's parents are fund raising to find a cure for SMA so another family does not have to go through this tragic loss.
Click here to donate to Dr. Kaspar's SMA Gene Therapy through Sophia's Cure which is a non-profit organization so all donations are tax deductible.
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